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2016 TASH Conference has ended
Each year, the TASH Conference strengthens the disability field by connecting attendees to innovative information and resources, facilitating connections between stakeholders within the disability movement, and helping attendees reignite their passion for an inclusive world. This year’s conference theme, “Gateway to Equity,” explores inclusive communities, schools, and workplaces that support people with disabilities, including those with complex support needs, in living a fair, just, and balanced life. Return to TASH website.

avatar for Monika Jones, Esq.

Monika Jones, Esq.

The Brain Recovery Project
Executive Director
Los Angeles, CA
Monika Jones is founder and Executive Director of The Brain Recovery Project. Her first son, Henry, was born with total hemimegalencephaly – a rare unilateral brain malformation which caused him to have hundreds of seizures per day shortly after birth. The seizures included infantile spasms, a catastrophic epilepsy which can result in profound intellectual and motor impairment if not stopped early. Henry required multiple hemispheric surgeries, the first at three months old.

Ms. Jones is the principal investigator of the Global Pediatric Epilepsy Surgery Registry - a prospective and retrospective study, powered by parents of children with epilepsy, to better understand the developmental trajectory after surgery. She was the project lead for the award from the Patient Centered Outcomes Research Institute for the innovative 2019 stakeholder meeting to better understand the functional implications of large resective and disconnective epilepsy surgeries.